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CPN's In the Zoom Room: What Siblings Wa...
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The Feeding Tube is a difficult decision...
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The continuing relationship with her pro...
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You can't ever be fully ready. (Sanfilip...
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How much longer is this going to take? I...
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“We always knew we wanted her to die a...
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It’s one thing to NOT know you’re a ...
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More Children? It was important to talk ...
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How we thought about a feeding tube or n...
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No one wants to feel like they’re ‘g...
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Once we understood what it was, we got o...
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Her sharp decline was hardest on her bro...
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Sanfilippo /MPS: The dreaded question. ...
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We were lucky to always be on the same p...
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Sanfilippo/MPS: We hoped she would live ...
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The church provided emotional support fo...
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Our primary care pediatrician was our bi...
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Your day-to-day life can be a happy plac...
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Talking to a Third Party, “Am I crazy?...
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Our first child's fatal diagnosis, with ...
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Sanfilippo: The road to diagnosis
Family Video Collection
Cari
Cari, mother of Dylan (age 11) and Jessie. Jessie had Sanfilippo Syndrome and died at age 13.
CPN's In the Zoom Room: What Siblings Want
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