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I’m proud of keeping it positive.
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I’ve learned …
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What was most helpful was the talk aroun...
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I don’t know what impact Jake’s deat...
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Don’t try to fix it. You don’t have ...
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He has taken over the entire home.
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You evolve into all these things.
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The unknown is the hardest part, not the...
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There is no planning. You’re just ther...
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What if something happens to one of us, ...
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It was a big disconnect.
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It’s the three of us, forever.
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You decide where you want to be.
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Coming full circle, I think it’s been ...
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I worry in phases about how Jake’s dea...
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I don’t want him thinking about his br...
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It’s hard to do but we do it.
Family Video Collection
Barb and John
Parents of Jake (18 at the time of this interview) who has Dravet syndrome and Secondary Mitochondrial Dysfunction, and older son Ryan.

I’m proud of keeping it positive.
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