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A diagnosis of Krabbe; and the medical t...
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A mom on grief in bereavement: “I hope...
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“My race does play a role in my need t...
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A quiet end to my son’s life
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A mom on deciding this time NOT to treat...
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The value of Palliative Care: At first I...
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The road to DNR: Only when the situation...
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During his life, and at his service, I d...
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In the early scary days, with shock of d...
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Feeling as a PARENT at home vs Speaking ...
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A mother’s need to get as much informa...
Family Video Collection
April
April, mother of Jackson.
Jackson had Krabbe Disease.
A diagnosis of Krabbe; and the medical team getting to meet him before his condition progressed.
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