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Home > Events > Upcoming: In the Room: Using Social Media: Pros and Perils of Virtual Engagement
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Upcoming: In the Room: Using Social Media: Pros and Perils of Virtual Engagement

May 21, 2026 12:00 pm Register for the Event
Upcoming: In the Room: Using Social Media: Pros and Perils of Virtual Engagement

About

Social media has transformed how families navigate complex medical journeys, creating unprecedented opportunities for connection, information sharing, and support. For parents of children with medical complexity and rare conditions, online platforms can offer vital lifelines to communities who understand their unique challenges. Yet these same spaces also present risks that deserve careful consideration. This webinar, featuring Dr. Karen Low and a panel of parents, explores the multifaceted relationship between social media and families managing complex pediatric health conditions. 

This event will take place on Thursday, May 21st at 12:00 pm ET (11:00 am CT, 10:00 am MT, 9:00 am PT).

Learning objectives:

  1. Describe how parents of children with medical complexity and rare conditions engage with social media.
  2. Identify potential risks of sharing information on social media.
  3. Name potential benefits of seeking support through social media.

Continuing education credit information coming soon.

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The Panelists


Dr. Karen Low, Consultant Clinical Geneticist and NIHR Clinical Research Fellow

Dr. Karen Low, Consultant Clinical Geneticist and NIHR Clinical Research Fellow

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Stacey Montgomery, Senior Insurance Sales Agent

Stacey Montgomery, Senior Insurance Sales Agent

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Karen Morici, Patient & Community Outreach Coordinator, CDG CARE

Karen Morici, Patient & Community Outreach Coordinator, CDG CARE

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Tameka Simmons, Founder & Executive Director, Through Evely’s Eyes; Certified Patient Leader

Tameka Simmons, Founder & Executive Director, Through Evely’s Eyes; Certified Patient Leader

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