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In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing

February 10, 2026 8:00 pm
In the Room: Unlocking Answers: What Every Parent Should Know About Genetic Testing

About

Genetic testing can play a powerful role in helping families find answers about their child’s health. In this session, Jessica walks you through the different types of genetic tests, what they can (and can’t) tell you, and how they’re used to diagnose a wide range of conditions. She also talks about how re-checking genetic data over time can lead to new insights and better outcomes. Finally, she talks about how ongoing efforts are making genetic testing more available and more useful for families from all backgrounds.

Video Recap


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The Panelists


Jessica Hess, MS, GC

Jessica Hess, MS, GC

Jessica is a genetic counselor and the Associate Director of Patient Advocacy & Engagement at GeneDx, where she leads collaborations with patient advocacy organizations to strengthen community support, elevate patient and caregiver voices, expand access to meaningful genetic insights, and provide education to rare disease communities. She has spent her entire career in the rare disease space, holding roles across clinical counseling, clinical marketing, and nonprofit leadership. Prior to GeneDx, Jessica worked closely with the rare caregiver community, supporting families navigating complex care journeys.