Parents of a child with a life-limiting metabolic disorder, metabolic acidosis, explain their thinking in going ahead with a subsequent pregnancy — their son was doing well, they had a great medical team in place. We can do this!

Featuring the Gauvin family and the unique story of Beckett and Clementine.

A mom talks about how the medical figures are authority figures but there is an equal give and take between parents. Parents are the best source of support. “If you’re comfortable, you make the other people comfortable.”

A dad of two children with a rare metabolic disorder talk about how parents trust and seek comfort, advice and support most from parents of other sick children who are in the same situation.

Parents of two children with a rare metabolic disorder talk about how their big sister become so comfortable in the hospital and with doctors, but what a toll is also took on her young childhood.

A couple whose two children died of a rare life-limiting disease within 8 weeks of each other share how they think about the life they gave their children.

Mom: I don’t think you have to be 80 to live a good life, not at all.

Dad: We were focused on how much amazing milestones and — how much fun can these guys have, regardless of any timeline or number.

The mom of two children who died from a rare metabolic disease shares: “I write a lot. I practice yoga. I did grief counseling. These three components made a beautiful pathway for me to walk along. It didn’t give me answers but gave me a structure to work through my grief.”

Bereaved parents of two children who have died talk about how unbearably sad, ’emotionally crippling’ it is for children to die but how especially important it is for parents to be able to talk about them.

Bereaved parents of two children who have died talk from a rare disorder about how and when they say four vs two. — You run into people and you sell out. It’s easier. We figure out how to say 4 and explain. I’m sorry if I’m ruining your day. This is our whole story.