The mother of two sons talks about how even though her eldest son, Andy’s condition was a spontaneous mutation, she couldn’t find comfort in the odds that it wouldn’t happen again because they had already been there once. 

The mom of two sons talks about preparing for the birth of her second son, Zach, after a stressful experience with her eldest son, Andy, who was diagnosed with Marfan Syndrome at birth. She found comfort in her local OB-GYN’s office and the familiarity it offered her. 

Three bereaved moms share their beliefs about the connection between their children who have passed and their children who follow. They talk about the beauty of the signs they have been given, the intersection between life and death, and seeing beyond what happens on earth. 

The mother of two sons, Andy and Zach, talks about the complicated and emotional process of moving Zach into Andy’s old room after his passing in preparation for the birth of her third son. Andy was diagnosed with Neonatal Marfan Syndrome at birth and passed away in October of 2019. She discusses what they chose to donate, what they chose to keep, and how they keep Andy present in their everyday lives. 

The mom of a son who passed away after being diagnosed with Neonatal Marfan Syndrome at birth talks about his cremation and their burial plans. 

The mother of two sons, the eldest of whom was diagnosed with Marfan Syndrome at birth, recounts what it was like when their second son was born and her older son’s baseline shifted within the same year.