Parents Nate and Kate describe: the extraordinary care they received in the hospital following their son’s birth, including a dedication ceremony in the hospital. They discuss the challenging feeding issue; no car seat, no nursery at home. Their friends rallied. “We winged it for two sweet weeks…There have been some redemptive moments in this…We had over 80 people meet him.”

Parents Nate and Katherine describe how they gathered information from others to inform their decisions after birth. The feeding tube was a hard decision. They talked with other parents, and a palliative care doctor from their church, and read from Facebook groups. Stories of others helped them see what his quality of life was likely to be. Kate talks about her fear of regret.

Parents Nate and Katherine talk so tenderly about coming to understand how they differ in their grief response and supported each other. “We were trying to be gracious with each other and let the other grieve the way they needed to. That’s tricky.” They worked with a grief counselor in the prenatal period and continued after. Nate describes how complex it was and how he lacked the skills. “It was a tricky time.”