9/27/2023 My Epic Self-Care Fail and What I Learned from ItAbout fifteen years ago, one of my worst practical fears came to pass when I…
When Our Doctor Cried with UsThere were many tears during the first year of my daughter’s cancer treatment. Her tears,…
Navigating Overwhelm as a Parent of a Chronically Ill Child: Strategies to Manage Four Challenging ThoughtsEverything seemed to be going according to plan. I had worked tirelessly to become a…
Caregiver's ManifestoThe idea for Caregiver's Manifesto started with wanting to capture a number of the most…
A Dose of CourageI am really tired. Mentally. Physically. Energetically. I am tired of politics and of the…
Fulfillment in THIS Motherhood My son, Oliver, has Tay-Sachs disease; a rare genetic condition where a normal, healthy…
Unexpected Echoes in the Coronavirus CacophonyIt was an unsettling moment of déjà vu for my husband and me – driving…
Parents considering a clinical trial for their child are courageous indeed.When my daughter Cameron and nephew Hayden were diagnosed with infantile Tay-Sachs in 1999, there…
