3/20/2023 A Framework for Medical Decision-Making when a Cure is Not PossibleThis post is my first attempt at distilling into words the medical decision-making framework my…
Finding HOME in the NICU and the Heart Our son Sage was born healthy, or so we believed. There were no pre-determined problems…
Language that builds a bridge: "Please help me understand"“Tell me what you understand about your son’s condition.” With this straightforward request, my son’s…
What anguish looks like: when parents realize they aren't in control. But neither is anyone else.I have been following the Charlie Gard case in England – the infant whose rare…
Mothers are Warriors. But Some Battles Can’t Be Won.Mothers are warriors. Ultimate fighters taking on the world on behalf of their children. As…
Love WinsI struggled with fear when my daughter, Lydia, was diagnosed with Rhabdomyosarcoma (an aggressive cancer).…
Pediatric Ethics Committees: An Under-Used Parent Resource“Like being sent to the Principal’s office.” That was how a colleague described being told…
Is Your Pediatrician On-Board?Mercifully, serious illness in children is rare. But it happens. If you’re reading this post,…
