4/9/2020 The Great EqualizerThese days, in the midst of a global pandemic, people are feeling vulnerable, anxious, isolated,…
Reflections on Adult ParentingFirst published on The Dravet Syndrome Foundation site, June 21, 2019. Barb and John were…
A Blessing and a BurdenThe author, Barb, is a founding parent advisor to Courageous Parents Network. This post was…
From the Outside Looking In: A Grandmother’s PerspectiveWhat is it like to be the grandparent of a medically complex child living with…
A Letter to the Medical Residents at My Son's HospitalHere is what I would like you to know. We are mentally and physically…
Daring to Take Care of Yourself/Myself Ask any mother of a child with complex medical needs about practicing self care and…
The Value of Massage Therapy for Your Child (and You!) Most people, when asked, might think of massage as a luxury, a splurge, something…
