Podcast: Cari – we were living the best years of her life, Sanfilippo Syndrome

Cari is the mother of Dylan and his older sister Jessie. Jessie died in December 2015, at the age of 13, from Sanfillipo Syndrome, a form of MPS. Cari and her husband Matt say that Jessie was the light of their family, always happy, and with a huge smile for everyone, especially her brother who she absolutely adored.