Executive Director, Blyth Taylor Lord: The genesis of Courageous Parents Network is in the cumulative experience of bereaved parent and pediatric palliative care advocate Blyth Lord. Following her daughter Cameron’s death in 2001 from a genetic illness, Blyth began offering her perspective on the needs of families caring for children with life-limiting illness and how providers can best meet these needs. Blyth represented the parent perspective on panels and in workshops with pediatric residents and specialists. Drawing on more than twenty years of experience as a television producer (ABC News, WGBH), she produced an award-winning film with the American Academy of Pediatrics to help train doctors in how to work with families from the time of diagnosis through to the end-of-life. She also produced an educational film, funded by a grant from Genzyme/Sanofi, about parenting children with life-limiting illness.
Blyth has worked with leaders in the field of pediatric palliative care, such as doctors, nurses and social workers, patient advocacy groups, palliative and hospice care providers, bereaved families, and families whose children are currently living with life-limiting illness. She serves on the board of National Tay-Sachs and Allied Disease association (where she helps oversee NTSAD’s family support services), as a board member of a bereaved parent support group with The Children’s Room, and as co-chair of the Parent Working Group for the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine.
Community Manager, Kerri Padgett: Kerri worked with children with complex medical needs for many years before becoming a parent to one herself. Her son Kai was born with an inoperable brain tumor that took his life just after his second birthday. During Kai’s short life, Kerri focused on quality of life for her son and became heavily involved in the many facets of the palliative care community. Since Kai’s passing, Kerri has remained a part of this community through her work as a pediatric massage therapist, blogger and advocate for families of children with complex medical needs. Kerri believes strongly in the efficacy of whole family wellness and peer support surrounding end-of-life care for a child. Her personal experience gives her relevant perspective that she is always happy to share with others.
Coordinating Producer, Rebecca Kuczarski: Rebecca is the mother of three children, her youngest Sophia died from complications of treatment for Leukemia. Rebecca has a professional background in fundraising for causes she believes in and she is loving digging into all the Google analytics!
- Steve Segal, Chair: Lecturer, BU School of Business; Founding Partner, JW Childs. MBA, Harvard Business School.
- Andy Offit, Treasurer: Special Assistant, Mayor’s office of Somerville; Wellington Management. MBA, UPenn Wharton.
- Elizabeth Cohen, Secretary: Senior Development Associate, Jewish Family and Children’s Service. MPH, Boston University.
- Stephanie Connaughton: Principal/Owner, Sequence LLC .MBA, UPenn Wharton.
- Rob Frasca: Managing Partner, Cosimo Venture Technology Partners. MBA, Carnegie Mellon.
- Lisa Franks: Managing Partner, Taylor Wealth Management Partners. MBA, Harvard Business School.
- Bob Searle, ExOfficio, Chair of CPN’s Parent Advisory Board.
- Sandy Clancy, ExOfficio, Chair of CPN’s Professional Advisory Board
Content Director, Nancy Frumer-Styron, PsyD, JD: Dr. Frumer-Styrom is on-camera psychologist for the Courageous Parent Network’s parent videos, ensuring that parents are hearing what they need and are receiving expert information, suggestions, and guidance. Dr. Frumer Styron is a licensed psychologist who specializes in therapy for children with life-limiting and life-threatening illness. Her focus has been on anticipatory grief for all members of the family. Nancy was a staff psychologist and training director at Dana-Farber Cancer Institute for twenty-three years and until recently, was the Clinical Director of the pediatric division in the Department of Psychosocial Oncology and Palliative Care at Dana-Farber/Children’s Hospital Cancer Center. She now has a private practice in Lexington, MA, and is also the Clinical Director for The Children’s Room, the bereavement support program for children and parents in Arlington, MA.
Cameraman and Editor, Bill Parker, Hindsight Media: Billy has been working in the film and video industry for over thirty years. He developed his skills as an oral historian at Chelsea High School where he taught film-making to students from around the world. He helped them craft their own personal stories using video as a medium. Creating personal histories for families and organizations was a natural progression and he has been doing that in the Boston area for the last twelve years with his company Hindsight Media. His daughter is a cancer survivor and his involvement with palliative care is at a personal as well as a professional level. In 2012, he and Blyth teamed up to help create a video to help families of children with life-threatening illnesses, Parenting a Child with Life-Limiting Illness.
Developer, Web & Platform Studio: Courageous Parents Network’s content management system and site is overseen by developer extraordinaire Zach Brewer. We could not do this without him!