2/19/2024 Diplomas and DiseasesIt’s a normal weekday morning and I’m in my white Toyota Sienna minivan at a…
A therapist’s perspective: Supporting your child with a rare and fatal disease.During my son Lucas’s life, I often struggled with how many therapy sessions to schedule.…
Navigating therapies when your child has a rare and fatal diseaseI shifted Lucas in my arms, picking up his feeding pump backpack in one hand…
The Underestimated Power of Low Expectations Did you make a New Year’s resolution? What would help you stick with it?…
What can parents handle? The truth (delivered with care). Every family is different and it is important not to over generalize. I know that.…
Connecting the DotsI am struck with a recurring phenomenon, of parents gradually "connecting the dots" of clinical…