Medical Interventions: Tubes, Trach, Surgery etc
Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions
The mother of a son with SMA and the mother of a son with a mitochondrial disease share their thinking and reasons for their respective decisions about tracheostomy for their sons.
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Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions
A feeding tube: Other parents gave us permission to make our own decision
Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries
Dialing back feeding at the end: looking for indications that the body isn’t tolerating feeds.
